It's been nearly three months since I have written here! I have been giving myself some time and grace as there has been so much intense battling going on within me and it has been a lot. Accepting Huntington's disease still continues to be hard and there are days I long to go back to when everything appeared simpler. I was faced with this again when I had a letter come through about my next annual HD Enroll appointment which I was not expecting till November. It threw me off that they wanted to see me sooner than I expected and I was once again in a wrestling match - I did not want to do this appointment. I did not want to face it again and have it all dragged up again. Everything within me revolted. I began to dread the impending day truly believing that it was going to cause a major setback in my journey. I had come this far and I did not need to go backward I told myself. I paced up and down awaiting their arrival but no one came. Still, thirty minutes went by and no one
I wanted to write this post, especially for those who are also on their own God journeys as well as walking through the Huntington's disease one too because it is a mountain and will need much grace. I have been through many highs and lows and sometimes it has been hard to see a way forward but God has continued to meet me there in that place. It has been a long journey since I entered this new place in my faith and there was a point where I was not entirely certain I was going to make it through. It's hard to find a place to begin but I will start where I first felt the trembles of my life breaking apart. It was in the days of 2021 when I realized that I was probably never going to have children naturally. We had tried for so many years and nothing had happened. The grief felt endless but I also started to feel something new rising within me - mourning. I began to mourn this circumstance in our lives. Every place I walked through was like a constant minefield triggering off